Recovery
Culture Readiness Inventory
by Mark Ragins, M.D.
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Recovery is
gaining serious momentum and being pushed on generally ambivalent systems,
programs, and people to implement by outside forces like congressional
committees, presidential reports, and us. Efforts to this point have focused on
promoting belief in recovery as a possibility by sharing first person accounts
of recovery, research data about its existence, and some efforts to describe the
paths to recovery (My “4 stages” is one of a number of well regarded examples.)
The next stage is also underway defining and training in practices that promote
recovery (e.g. illness management, consumer staffing, supportive employment,
WRAP, rehabilitative goal setting, self help, psychoeducation, community
integration, ACT, medication collaboration, supportive housing, etc.).
Unfortunately, the culture that these practices are being disseminated through
is increasingly the “evidenced based culture”, another version of the medical
culture recovery is seeking to change. It is unlikely that the results of
putting a few recovery based practices within a medical culture to satisfy
outside pressures will be the creation of successful recovery based programs.
Increasingly, we are seeing the need to work directly with defining and training
recovery oriented cultures and leadership in order to create a fertile soil for
the seeds of recovery to grow in.
Defining a
recovery culture at this point of our development depends a lot on who you’re
talking to. One of the reasons for recovery’s present momentum is that multiple
forces are coming together under the same banner, but they have different
perspectives. In brief, there are 4 major forces:
(1) consumers –
They value consumer participation personally, programmatically, and politically
(“nothing about us without us”). Empowerment, wide spread consumer staff,
focusing on people instead of illnesses, choice, consumer satisfaction, breaking
down barriers between staff and consumers, quality of life opportunities
(housing, employment, education, etc.), and respect as and anti-stigma tool
(“stigma can be more disabling than symptoms”) are their focus.
(2)
rehabilitation services – They value increasing people’s functioning and
participating in our community in meaningful roles even if there are still
symptoms. Training programs, rehabilitative goal setting, supported quality of
life services, role creation, coaching, and consumer motivation are their
focus.
(3)
psychiatrists and the professional community – They are often seen as obstacles
to recovery implementation, but a subset have been energetic in promoting an
illness management model. Understanding illnesses, triggers, and medications,
stress management, coping skills, building protective social networks, family
and consumer psychoeducation, intensive staff supervision and support (ACT),
crisis alternatives to hospitalizations, implementing “best practices”,
reimbursement parity, and reducing symptoms and their impact are their focus.
(4) Social and
political systems – They want to impact the social and political costs of people
with mental illnesses. Reducing dangerousness, homelessness, incarceration,
hospitalizations and other social costs, integrating substance abuse consumers,
reaching out to unserved people, and collecting quality of life data to assess
accountability and efficiency are their values.
While these
perspectives are clearly not contradictory of each other - in fact they are
highly synergistic - it is rare for them to be integrated. Generally, people
are only seeing their own priorities. A common result is less effective,
fragments of recovery (e.g. a supportive employment program using an outside
unsupportive psychiatrist, a consumer program that excludes crisis or hospital
interventions and loses credibility when they send away people in crisis, a
coping skills class without consumer staff as models, a homeless outreach
program without medications, substance abuse treatment, or trauma therapy).
As a field we
are only beginning to integrate these values into a full recovery culture. Here
is an attempt to describe elements of an integrated recovery culture for a
“readiness inventory”:
(1) High
inclusion of consumers: Numerous consumer staff not just in special consumer
jobs, reducing us- them distinctions (shared bathrooms, work areas, meetings,
hard to tell who the staff and consumers are), safety based on “community watch”
rather than separating and forcibly guarding consumers, consumer choices and
input into goals, treatment plans, program services, multiple roles besides
treatment recipient, reduced boundaries, use of respectful, nonstigmatizing
clinical language.
(2) Leadership
and administration that treats the staff the way we want them to treat the
consumers: Emphasizing staff hope, empowerment, responsibility (giving them
control over some funds, choices, “high risk- high support”), and meaningful
roles Encourage staff to take on multiple roles besides professional so
consumers can take on multiple roles besides patient, lot’s of individual
expressiveness. Valuing every staff as an expert in something. Encouraging
staff to be emotionally expressive and open about themselves with consumers and
each other.
(3) Creating a
counter-culture of acceptance: Ability to welcome and include difficult,
socially undesirable, noncompliant people, “no fail” rules, outreach to
dropouts, minimize “lost to followup”. Including charity as well as treatment.
Minimal coercion, rules to follow, exclusions, “hoops to jump through”. Staff
accessibility both inside and outside building and after hours. Ability to make
individualized, collaborative plans. Staff are willing to engage in emotional,
“real” relationships with consumers instead of keeping them at a “professional
distance”. Staff have a subjective awareness of what the consumer is going
through and feels like.
(4) Holistic,
integrated care focused on the person not just their illness: Treatment plans,
services, outcome measurements focused on quality of life. Generalist staffs
organized into teams with overlapping parts, not separate specializations.
Limited “It’s not part of my job”. Collaboration with other social agencies
(Social security, Section 8 Vocational Rehabilitation, Children’s Services,
probation and parole) rather than referrals to other treatment programs.
Integration of substance abuse treatment for every staff and program. Staff
knowledge of life situations, not just diagnosis. “Doing whatever it takes”.
(5) High utilization of rehabilitative,
recovery, and illness management techniques within a conscious framework of
recovery promotion: Regardless of funding availability a prioritization of
these services (supportive housing, employment, education, training, coaching,
illness self management, psychoeducation, ACT). Staff knowledge of recovery
stage, goals, and individual progress (“What is the rehabilitation value of this
activity?”).
These elements can be further delineated and
even measured to create a recovery readiness inventory tool.
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